Our Team was thrilled to attend and present at ISPOR US. From our sponsored reception with industry friends to presenting in short courses on Sunday, our experts were very busy! Several posters were presented throughout the conference including "Implementing the Generalized Risk-Adjusted Cost-Effectiveness (GRACE) Model for Sickle-Cell Disease - A Case Study" ranking in the top 5% of posters. PRECISIONheor
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Is your lab still sending out for confirmatory Western Blot on Lyme Disease or (even more laborious) doing it yourself? Not only are you missing early cases, you're missing out on an easier way to do it all in-house. Find out more about the first FDA approved modified two-tier testing (MTTT) algorithm using only EIA and detects up to 30% more cases of early Lyme Disease. #lymedisease #MTTT #sebia #ZEUS #autoimmune #infectious #disease #clinicallaboratory #medicallaboratory
Our webinar is less than a month away! Join us 📅 Tuesday, November 14 🕐 1:00 PM EST "Improving the diagnosis of Lyme disease with ZEUS Borrelia MTTT. See who you could be missing" A review and discussion of the enhanced sensitivity of ZEUS’s Borrelia Modified Two-Tiered Testing (MTTT) algorithm in detecting early Lyme disease as compared to the Standard Two-Tiered Testing (STTT) algorithm. If you are still using STTT, learn how to start detecting nearly double the number of early cases (stages 1 & 2) of Lyme disease with ZEUS MTTT and eliminate the need for immunoblots. Sign up today: https://lnkd.in/emBhttMN Can't make it? Register and receive a link to the webinar recording to watch at your convenience. Don't miss out!
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https://lnkd.in/eum6JAPb Come learn about all the great resources that other rare disease organizations have already created. What you need might already be invented!
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Today at 16 CET our webinar “Young people with childhood Lupus: do they need a different approach in adult life?” Make sure you register at this link: https://bit.ly/3UCfH3
💚💗💙 Let's start with the ERN ReCONNET Rare Disease Awareness! Webinar of Childhood Lupus with Prof. Sylvia Kamphuis from Sophia Children’s Hospital, Erasmus University Rotterdam - Medical Center, Netherlands, moderated by our Scientific Coordinator, Dr. Rosaria Talarico from Azienda Ospedaliero Universitaria Pisana, Pisa, Italy. This important event is scheduled for Feb. 28th at 4 pm. Topic is Disease Specific and targeted audience are healthcare providers. Registration is OPEN, here you will find also the registration links of all the webinars scheduled for season 2023 - 2024: https://bit.ly/3DxXDhi More info and all the resources available on SLE can be found here: https://bit.ly/3tdOzfV
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Trial By Error Blog: An Interview with the Authors of the European ME Alliance Survey of 11,000+ Patients "Earlier this month, the European Myalgic Encephalomyelitis Alliance (EMEA) released a 235-page report on a survey of ME/CFS patients in Europe titled “Same disease, different approaches and experiences.” Read more and watch the interview here: https://lnkd.in/erFZWPzp #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #EuropeanMEAlliance #Survey
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Save the date: this Rare Disease Day, join us for the launch of Mapping Rare, an interactive project to showcase the achievements of our global community. The map will be launched on our website on 29 February, followed by a webinar on 1 March to introduce the project, including a Q & A with the participants. What is Mapping Rare ? 🌍 a multimedia infographic project which will serve as a benchmark for RDI and rare disease community actions, past and present, and illustrate how our members drive change at the global, regional and national levels 🌎 a visual representation of the accomplishments of the rare disease community and the future milestones that we hope to achieve as a united movement joining efforts towards the common goal of improving the lives of PLWRD 🌏 a tool to educate the public about rare diseases and the challenges PLWRD face in accessing diagnosis, treatment and care, along with potential community-driven solutions ➡ Don't miss it! Register here: https://lnkd.in/dZY-MJnr
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Leveraging artificial intelligence with patient data and your expert clinical impressions, IDEXX DecisionIQ™ works with you to identify subtle patterns in current or developing diseases—all within VetConnect® PLUS. Learn more ⬇️ #veterinarymedicine
IDEXX DecisionIQ
idexx.com
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Attending today in Madrid, the 2024 Europe Rare Disease Summit. Very interesting different pannels to discuss various aspects of Rare Diseases and sharing concerns about the main issues which are faced. Agreement in main issues being 1) Diagnosis 2) Quick development & approval process to covert science into treatment. 3) Pricing & Market Access From patients’ perspective a big ask for better coordination in treating these diseases.
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Jeroen Paul Jansen, Laura Panattoni, Shannon Cope, Harlan Campbell, Ross Maclean, Keith C., Dylan McLoone, Alicia Pepper, Ali Mojebi, Kabirraaj (Kabir) Toor, Meaghan Roach, MPH, Melissa Culhane Maravic, Shelby Corman, Ivar Jensen, Marlon Graf, Philip Cyr, Brianna Worobel, Carolyn McGrail, Kathy Lang, Jeanette Lazusky, Beckley Miller