#InTheNews: Achieving true #PrecisionMedicine requires research that reflects the diversity of our communities. There are over 50,000 people participating in the “In Our DNA SC” study, but researchers with the Medical University of South Carolina and Helix are working to ensure there's more diversity involved. “If you're not participating in a clinical trial for a focus group or outreach education and you're not in none of these meetings, your voice does not count,” Lee Moultrie, "In Our DNA SC" Committee Member, said. ABC News 4 | WCIV-TV has more on the strides that the “In Our DNA SC” team is making: https://bit.ly/3JVw8kQ
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📢 Are you interested in an expert analysis of the latest scientific data presented at #ESHRE2023? 🔬 Join a panel of industry leaders at the #ReprofactsExpertDebrief as they digest and summarize their key findings, breakthroughs and personal highlights from over 250+ oral presentations, 60+ invited lectures, and 800+ e-posters showcased at #ESHRE. During this exclusive coming together of great minds, a panel of #professors, medical directors and senior #embryologists from around the world will meticulously analyze some of these new studies, delving into their importance, robustness, and clinical relevance. 💭 Get ready for thought-provoking discussions between pioneers in their respective field that could help you to get ahead of the curve and make more informed clinical decisions. Whether you're a healthcare professional, student, researcher, or simply passionate about reproductive health, this FREE expert-led, event is a great resource for you. 🗓️ Mark your calendars for July 8 and secure your seat by registering here: https://lnkd.in/e38_qSe7 #KnowledgeSharing #FertilityInsights #ReproductiveMedicine #Genomics #IVF #CooperSurgical #ChangingFertilityCare #ForGenerationsToCome
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Equity, Diversity, Inclusion, Culture Transformation, Employee Development and Transportation Security Consultant
From UCLA Health Calling for diversity in clinical trials This month is National Minority Health Month, the perfect time to shine a light on an important issue: equity in clinical trials. UCLA Health researchers engage in more than 1,500 clinical trials at any given time. But patient participation in those clinical trials is still greatly limited, often due to cultural, social and socioeconomic factors, such as: Distrust of researchers Lack of knowledge about the process Logistical challenges, such as lack of transportation and child care Risk and potential negative effects of trials Without participants from underrepresented populations, experts cannot assume that the medical breakthroughs achieved through clinical trials apply to all races and ethnicities. Diversity in clinical trials is critical for improving health equity. To address the lack of diversity in studies, UCLA Health is exploring ways to reach underrepresented populations and engage community leaders. Think about participating in a clinical trial or other medical research if you are Black, Indigenous, or People of Color (BIPOC) or other underrepresented groups.
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How can we improve diversity and inclusion in clinical trials in multiple sclerosis? This study involved an international workshop that developed recommendations such as cultural competency training, adaptivity in eligibility criteria, and community engagement in study design. Read the full study here: https://lnkd.in/gR6AhTPW #multiplesclerosis #msresearch #diversityinresearch #diversityandinclusion #clinicaltrials
Enhancing diversity of clinical trial populations in multiple sclerosis
ncbi.nlm.nih.gov
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The NF Registry has a vital role in making NF research visible - not only is it a repository for patients to discover clinical trials, but researchers also use the data provided by patients to discover areas of need and inform new studies. The NF Registry is for all types of NF (including NF1, NF2-related schwannomatosis, and schwannomatosis), and is open to all populations, including any age, race, ethnicity, or gender. NF knows no boundaries, and understanding its impact across all types of people from all over the world, from childhood to adulthood, is essential to finding the answers that will improve the lives of all NF patients. In this video, researchers discuss the impact the NF Registry has had in their work to accelerate research and advance therapy development. Visit nfregistry.org to create your account or update your record. #endnf #makenfvisible
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Researchers and scientists: Did you know May 20th is Clinical Trials Day? Recruitment of various races, ethnicities, genders, and ages is crucial in clinical research. One of NIA’s top priorities is understanding the factors contributing to disparities among older adults. Learn more in this video: https://lnkd.in/eh-aSnXM #NIHAging #ClinicalTrialsDay #ClinicalTrials
Advancing Diversity in Clinical Trials
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✨ Equalizer Highlights ✨ We’re highlighting the academic women who will be pitching their innovations at #Equalize2024 ! Kat Schmolly Medical Student | UCLA Homepage: www.zebraMD.org How might your work impact the world? 🌎 🎙A point of care, EHR integrated clinical decision support system could help shorten the diagnostic delay for rare disease and give personalized evidence-based clinical management recommendations to prevent secondary comorbidities. Currently, the average diagnostic delay for rare disease is 10-15 years, even longer in rural and underserved areas. Inability to access specialty care is one of the most common reasons for this delay and mismanagement, and this is a problem we can solve with our Project Zebra. ____ Bryn L. NSF Graduate Research Fellow | University of Vermont Complex Systems Center Research Associate | Broad Institute Sabeti Lab CEO/Co-Founder | Biobe Lab: https://lnkd.in/eNYiCRYT Homepage: https://www.biobe.org How might your work impact the world? 🌎 🎙I am passionate about addressing the gap in current pediatric and family care and envision the application of new data and physiology-based technologies within this space to revolutionize the modern mental health systems— starting when children have the highest chance of long-term success following identification.
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How All of Us Help Research #UAB The future of Alabama's health begins with you. Join a research effort with one million or more people nationwide to create a healthier future for all of us. What is the All of Us Research Program? The All of Us Research Program is a large research program. The goal is to help researchers understand more about why people get sick or stay healthy. We want one million or more people to join. People who join will share information. This might be about their health, habits, and what it's like where they live. It might also be about family history and genes. We also want to know if you will want information about your DNA. Researchers will use this to do studies. This may help improve health for everyone. Call 833-Join-UAB and visit https://lnkd.in/gzHXExGe for more information and to join.
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An amazing feature from Equalize Startups on Regional and National New York I-Corps Hub graduate, Bryn L.! Learn more about her startup at Biobe in the links below!
✨ Equalizer Highlights ✨ We’re highlighting the academic women who will be pitching their innovations at #Equalize2024 ! Kat Schmolly Medical Student | UCLA Homepage: www.zebraMD.org How might your work impact the world? 🌎 🎙A point of care, EHR integrated clinical decision support system could help shorten the diagnostic delay for rare disease and give personalized evidence-based clinical management recommendations to prevent secondary comorbidities. Currently, the average diagnostic delay for rare disease is 10-15 years, even longer in rural and underserved areas. Inability to access specialty care is one of the most common reasons for this delay and mismanagement, and this is a problem we can solve with our Project Zebra. ____ Bryn L. NSF Graduate Research Fellow | University of Vermont Complex Systems Center Research Associate | Broad Institute Sabeti Lab CEO/Co-Founder | Biobe Lab: https://lnkd.in/eNYiCRYT Homepage: https://www.biobe.org How might your work impact the world? 🌎 🎙I am passionate about addressing the gap in current pediatric and family care and envision the application of new data and physiology-based technologies within this space to revolutionize the modern mental health systems— starting when children have the highest chance of long-term success following identification.
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Join us on September 14 at 5 p.m. for, "The BIPOC Guide to Disrupting Research Barriers," a special kTalk event. Dive into the science of language, inclusive communication in healthcare, and the importance of elevating BIPOC voices in research. #covid19 #longcovidresearch #vaccineinjury #BIPOCCommunity
Kindred Spotlight: Meet Yale Clinical Investigation Project Manager, Yashira Henriquez
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