Muscular Dystrophy Association

#MDA's legacy is built on innovation. Our research program has consistently pushed the boundaries of what's possible in #MedicalScience. Learn more: MDA.org/science #ClinicalResearch #ScientificResearch #ResearchToReality

Celebrating the newest member of the Scooby Doo Gang: Katherine! This weekend in Fairfax, Virginia, Katherine received her dream #ScoobyDoo mystery machine themed Magic Wheelchair costume as Velma the scientist, celebrating her 10th birthday! Katherine lives with spinal muscular atrophy (#SMA) and was the winner of last year’s #MDA x Magic Wheelchair Sweepstakes. We hope you love your amazing #MagicWheelchair, Katherine! Thank you to Muscular Dystrophy Association's Jennie King, Morgan Roth, Mary Fiance, Rachel Pikovsky, Sara Melton, and IAFF/MDA National Coordinator roger lopez for this incredible event with Fairfax County Fire and Rescue Department, Assistant Chief Walser, Bobby Young IAFF Union President Local 2068, and Joel Kobersteen, IAFF Local 2068 Fill the Boot Coordinator and Fairfax County Fire & Rescue Master Technician. IAFF Fairfax Fire Fighters are the #1 #FillTheBoot fundraisers for MDA's mission in the country! Huge thanks to our collaborators Christine Getman and Scottie Foertmeyer with builder Stefan Price at Magic Wheelchair for making this a magical day! Thanks to our partners for all their support of MDA families: CITGO Petroleum Corporation, International Association of Fire Fighters (IAFF), IAFF Fairfax County Fire and Rescue Department and IAFF Professional Fire Fighters & Paramedics Local 2068, Harris Teeter, National Association of Letter Carriers (NALC) and DECA Inc.   Video and photos: Noah Lillywhite & Lincoln Lillywhite

Introducing the newest member of the Scooby Doo Gang: Katherine! Today, we headed to Fairfax, Virginia to celebrate Katherine, who received her dream #ScoobyDoo mystery machine themed Magic Wheelchair costume as Velma the scientist, celebrating her 10th birthday!  Katherine lives with spinal muscular atrophy (#SMA) and was the winner of last year’s #MDA x Magic Wheelchair Sweepstakes. We hope you love your amazing #MagicWheelchair, Katherine! Thank you to Muscular Dystrophy Association's Jennie King, Morgan Roth, Mary Fiance, Rachel Pikovsky, Sara Melton, and IAFF/MDA National Coordinator roger lopez for this incredible event with Fairfax County Fire & Rescue Department, Assistant Chief Walser, Bobby Young IAFF Union President Local 2068, and Joel Kobersteen, IAFF Local 2068 Fill the Boot Coordinator and Fairfax County Fire & Rescue Master Technician. IAFF Fairfax Fire Fighters are the #1 #FillTheBoot fundraisers for MDA's mission in the country! Huge thanks to our collaborators Christine Getman and Scottie Foertmeyer with builder Stefan Price at Magic Wheelchair for making this a magical day! Thanks to our partners for all their support of MDA families: CITGO Petroleum Corporation, International Association of Fire Fighters (IAFF), IAFF Fairfax County Fire and Rescue Department and IAFF Professional Fire Fighters & Paramedics Local 2068, Harris Teeter, National Association of Letter Carriers (NALC) and DECA Inc. Shout out to #PIO Ashley Hildebrandt for all your support on this event!

Last night we honored Brooke Eby, Fern Cohen, Joann Wright on behalf of the late Victor Wright, Dr. Toby Ferguson, Stephanie Melillo Fradette PharmD, and Scott Sabatino for Price Chopper Supermarkets-Market 32 at Muscular Dystrophy Association’s Wings Over Wall Street. The event grossed over $350,000 for #ALS research. Since 2001, #WingsOverWallStreet led by co-founders Warren Schiffer, LCSW and Larry Schiffer has raised over $13 million to fund research to #EndALS. Join us and donate to hashtag #EndALSwithMDA here: https://lnkd.in/ezgfdfbs We're grateful for the support of the MDA Board of Directors attending including Chairman Governor Brad Henry, Anjan Aralihalli, Christopher Rosa, PhD, Hon. Robert Pipia, Stephen Furnary. Thank you to the MDA Wings Over Wall Street Committee members for making this such a success: Warren J. Schiffer, Co-founder of MDA’s Wings Over Wall Street, with Wings Over Wall Street Committee members Anjan Aralihalli, Jim Condron, Praneetha Desu, Brandon Hanna, Lauren Horak, Danielle Jaycox, Morgan Jaycox, Susan Jaycox, Grace Oakley, Jamie Schiffer, Larry P. Schiffer, Neil Shneider, Kimberly Unger, Lisa Marie Utasi, Jenna Walsh. Thank you to our sponsors CITGO Petroleum Corporation, IEX, Mitsubishi Tanabe Pharma America, Victor R. Wright Foundation, Biogen, Cboe Global Markets, USI Insurance Services, Voyager Therapeutics, Inc., Aegis. Photos by Wenlan Zheng.

The new issue of Muscular Dystrophy Association's Quest Magazine is here! Learn how to get involved in adaptive sports, how new digital technologies are streamlining clinical trials, and helpful financial planning tips for your long-term care needs. Check it out: https://lnkd.in/eQ9Zk9_j #QuestMagazine #AdaptiveSports #DigitalTechnologies #ClinicalTrials #MuscularDystrophy #ALS #Neuromuscular

Join us on June 11 and 12 from 4:30-7:00pm ET for our Muscular Dystrophy Association Virtual Learning Series: Myasthenia Gravis featuring presentations from Srikanth Muppidi, MD, Stanford University School of Medicine, Claire Spahn, PharmD, Stanford University School of Medicine, Jeffrey Rosenfeld, PhD., MD, FAAN, Loma Linda University, and Leslie Delfiner, MD, MONTEFIORE MEDICAL CENTER.   The event will include updates on advancements in research, care, and support for people living with MG and their caregivers. Information and resources to help navigate daily life and care decisions will be provided. This event includes opportunities to learn from expert clinicians and members of the MG community through Q&A. Register for FREE here: https://lnkd.in/eGK-qmgc Thank you to our sponsors at Alexion Pharmaceuticals, Inc., argenx, Genentech, Alexion Pharmaceuticals, Inc. and UCB. #MyastheniaGravisAwarenessMonth #MyastheniaGravis

We are thrilled to announce that Muscular Dystrophy Association’s Marketing and Communications team has been recognized as a finalist for the Top 100 Marketing Team Award by OnConferences! This achievement reflects the hard work, dedication and continuous accomplishments of our incredible team. Their commitment to our mission makes this recognition possible. VOTE TODAY: Help us win this honor by voting for MDA’s Marketing and Communications team until July 5th: https://lnkd.in/gMAFUUR4. #Finalist #TeamSucess #OnConIconAwards #OnConferences #MarketingCommunications

#LouGehrigDay has been a powerful reminder of the strength found in facing adversity. From Major League Baseball (MLB) ballparks across America to our MDA Let’s Play live stream in San Francisco, yesterday was about more than baseball—it was about community, courage, and connection. Thank you for joining us in celebrating and supporting people living with #ALS and related #neuromuscular diseases. We'll see you at more games throughout this week as MLB teams honor the life and legacy of Lou Gehrig at their home games. To make a donate and receive your own #EndALSwithMDA jersey, go to MDA.org/EndALS

Thank you to our friends at Muscular Dystrophy Association for your endless work for those living with neuromuscular diseases. Today was #LouGehrigDay - a day where baseball stadiums and parks across the country, celebrated the life of legendary baseball legend Lou Gehrig, and his battle with ALS. It’s a day to remember not just Gehrig’s baseball achievements but to spotlight ALS, the challenge he bravely faced. #ENDALS #MDA #musculardystrophy #musculardystrophyawareness #genetics #lgmd #limbgirdlemusculardystrophy #lgmd2c #raredisease #ultrararedisease #genetherapy #icebucketchallenge Michael J. Kennedy, MBA Nora Capocci, MPH

Today on #LouGehrigDay, we honor a legend whose strength continues to inspire millions. Across the nation, Major League Baseball (MLB) teams and fans celebrate his legacy and support the fight against #ALS. Join our MDA Let’s Play livestream at 2:15pm ET from Oracle Park in San Francisco to experience a unique initiative where gaming and community support intersect, empowering people living with ALS and related neuromuscular diseases. To join, visit https://lnkd.in/e3_ufD4N #EndALSwithMDA