Charcot-Marie-Tooth Association

Why does Kelsey #Cycle4CMT? Swipe to find out. ➡️ Join Kelsey and CMTA Raleigh community at their annual Walk and Cycle 4 CMT event! 📅 Date: August 24th at 9am 📍Location: 20 Anderson Point Dr, Raleigh, NC 🔗 Register now at cmtausa.org/4cmt #CMT #CMTAwareness #CharcotMarieTooth #CMTStrong #CMTAFamily #Walk4CMT

Join us at the 2024 Patient & Research Summit on September 6-8 in Denver, CO! Virtual attendance is also available. We can't wait to see you there! Register today at summit.cmtausa.org #CMTASummit24 #CMTAFamily #CMTStrong #CMTAwareness #CMTEducation #CMT #CharcotMarieTooth #CMTDisease

The Charcot-Marie-Tooth Association (CMTA), the world’s largest philanthropic funder of research aimed at bringing treatments to patients and improving the lives of those living with Charcot-Marie-Tooth disease (CMT), is excited to announce it has awarded the CMTA Center of Excellence designation to Dr. Oranee Sanmaneechai at Siriraj Hospital in Bangkok, Thailand. “The Charcot-Marie-Tooth Association is thrilled to welcome Dr. Oranee Sanmaneechai as the clinic director of the newly designated CMTA Center of Excellence at Siriraj Hospital,” said Laurel Richardson, CMTA director of community outreach. "This new center reinforces our commitment to improving the lives of those living with CMT, no matter where they are.” Learn more about the Thailand COE designation: https://lnkd.in/ex3h4a6b Find your closest Center of Excellence: https://lnkd.in/gpszrRu #CMTAFamily #CMT #CMTStrong #CMTAwareness #CharcotMarieTooth #CMTDisease #CMTCare #CMTCenter #CMTCOE #CMTDoctors #Thailand

ONLY A FEW SPOTS LEFT! Join us virtually on Saturday, July 20th at 3:00 pm (Eastern Time) for an Emotional Support Group meeting led by Cheyenne Alfino. CMTA will host monthly ESG meetings (virtually) focused on #MentalHealth support and #Wellness for the #CMTCommunity. Registration will be limited to best support the group. Learn More & Register Today: https://lnkd.in/e36HVifw #CMTAFamily #CMTStrong #CharcotMarieTooth #CMTDisease #EmotionalSupport #CMTCare #CMT

Recording Now Available! CMTA’s Lunch and Learn Community Event Series on Thursday, June 27, 2024 discussed the importance of staying active and embracing exercise in our daily lives while focusing on adaptive forms of #exercise, exploring unique ways to stay active, and discussing the importance of movement. Guest speakers included: • Steve O'Donnell – CMTA Board of Directors member and CEO of Therapies for Inherited Neuropathies • Julie Stone – owner of All Bodies Community, Certified Personal Trainer, and CMT influencer • Rebekah Knight – adaptive rower, former physiotherapy specialist, and CMT influencer • John Nixon – CMTA Advisory Board member, fitness coach, bodybuilder, and CMT influencer All four guest speakers and our host, Laurel Richardson, CMTA's Director of Community Outreach, are CMT community members themselves. This event is much more than a webinar. It’s a celebration of community, of our strength, of our resilience, and of the bonds we share through our CMT. Watch the recording today at https://lnkd.in/d_AeknQ #CMT #CMTAFamily #charcotmarietoothdisease #charcotmarietooth #CMTStrong #CMTAwareness #CMTA

Congratulations to Jamal Hill on qualifying of the US Paralympic Team at the #Paris2024 Games! Jamal was diagnosed with Charcot-Marie-Tooth disease (CMT) when he was 10 years old and continues to be an incredible inspiration as a #swimmer for #TeamUSA. The #CMTAFamily wishes Jamal all the best in #Paris! #CMT #CharcotMarieTooth #CMTAwareness #Paralympics #Paris24 #Swimming #JamalHill

A week they'll remember forever! ⛺️✨ When you donate $50 or more to CMTA’s Camp Footprint Program, you will receive a high-quality, comfortable 2024 CMTA Camp Footprint shirt - showing that you are passionate about providing a life-changing week for our youth. 🧡 Visit https://lnkd.in/evz28FuT to contribute to the magic of Camp Footprint! #YouthEmpoweringYouth #CMTAFamily #CMTStrong

Can't make it to Denver? No Problem! CMTA's 2024 Patient & Research Summit offers Virtual Registration for folks to tune in from anywhere around the world...Register today to join the global #CMT Community on September 6th-8th by visiting summit.cmtausa.org. #CMTAFamily #CMTStrong #CMTAwareness #CMTASTAR #CMTASummit24

Nerve pain for individuals with Charcot-Marie-Tooth disease (CMT) can be as sharp as snapping a rubber band on your feet. 👣 The Charcot-Marie-Tooth Association’s #CMTStrikesANerve is a campaign to raise awareness about CMT-related neuropathic pain and its debilitating effects. CMTA needs your support to accelerate the research to bring treatments and a cure for CMT. Ending CMT means ending chronic life-changing pain. To donate to our mission, visit https://lnkd.in/evs9bniH

Thank you to the #CMTASTAR Advisory Board who met in #Montreal last week, with invited CMT research special guests joining in (Bieke Bekaert, Dottie C., Lydia Daboussi, Ph.D., Alexia Kagiava, Riccardo Perfetti, Travis Rotterman, Shoshana Shendelman, PhD (not pictured), Angela Sisto, Marina Stavrou, Tamira van Wermeskerken, and Esther Wolfs). CMTA-STAR Advisory Board includes 30 of the top scientists in #CMT and related fields. It comprises a Scientific Advisory Board, a Therapy Expert Board, and a Clinical Expert Board. To learn more about CMTA-STAR, visit https://lnkd.in/gWa6p43 #CMTAFamily #CMTAwareness #CMTStrong #CharcotMarieTooth