MDS can be challenging to diagnose, but once diagnosed, it can be even more confusing for patients. Listen to Brian's story in this recent podcast recording: https://lnkd.in/eav2t7s6 and learn about getting second opinions as well!
Aplastic Anemia & MDS International Foundation
Individual and Family Services
Bethesda, Maryland 674 followers
We provide answers, support and hope to patients with rare blood cancers and bone marrow failure diseases.
About us
The Aplastic Anemia and MDS International Foundation (www.aamds.org) is an American nonprofit health and patient advocacy organization that supports, connects and educates patients, caregivers and health professionals on rare bone marrow failure diseases worldwide. It promotes and invests in collaborative clinical research to accelerate the discovery of better treatments and the search for a cure for aplastic anemia, AML (acute myeloid leukemia), MDS (myelodysplastic syndromes), PNH (paroxysmal nocturnal hemoglobinuria) and related bone marrow failure diseases. AAMDSIF is a 501(c)3 organization.
- Website
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http://www.aamds.org/
External link for Aplastic Anemia & MDS International Foundation
- Industry
- Individual and Family Services
- Company size
- 11-50 employees
- Headquarters
- Bethesda, Maryland
- Type
- Nonprofit
- Founded
- 1983
- Specialties
- Patient Education, Caregiver Education, Research, Health Professional Education, Rare Diseases, Aplastic Anemia, Myelodysplastic Syndrome, Paroxysmal Nocturnal Hemoglobinuria, Acute Myeloid Leukemia, and Bone Marrow Failure Diseases
Locations
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Primary
Get directions
4330 East West Highway, Suite 230
Bethesda, Maryland 20814, US
Employees at Aplastic Anemia & MDS International Foundation
Updates
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The recording is ready! Dr. Paquette explains the latest advances in treating Aplastic Anemia in this recent webinar--- did you miss it? Watch now: https://lnkd.in/e2VDMDub #aplasticanemia #marrowfailure #bonemarrow
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Christina Cline, RN, at the University of Florida Health Cancer Center, describes one of the common symptoms of treatment for bone marrow failure diseases: fatigue. Learn how patients can communicate about their fatigue with their healthcare team now: https://lnkd.in/eGZBNDiF
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Advances in the Treatment Paradigm of Myeloid Malignancies: From Biology to Clinical Practice Webcast Recorded at #ASH23, watch the session for Continuing Education now: https://lnkd.in/eiqpAtzZ
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"...I knew no good news came after 6:00 p.m. If it couldn't wait until morning, the news must be bad, and I quickly opened my voicemail." Read Meghin's story of diagnosis, treatment, and survivorship in her own words here: https://lnkd.in/eZzvHaZr #aplasticanemia
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Dr. June-Wha Rhee describes the potential for cardiovascular complications after HCT, or hematopoietic stem cell transplantation, in this session from the 2024 Los Angeles Patient and Family Conference. Watch here: https://lnkd.in/efhJXeSX #aplasticanemia #marrowfailure
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Submit your LOI: AAMDSIF offers grants this cycle that focus on bone marrow failure diseases and GVHD. Find out more and download the guidelines for the LOI here: https://lnkd.in/eYhqS6Yn. Don't wait to get started on your LOI!
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"The next step was to try horse ATG since she would have to go far away for a bone marrow transplant. She had five days of aggressive---and painful--- treatment." Read Tiffany's story of hope and faith here: https://lnkd.in/eRPmg3XH
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We remember all who gave all. The AAMDSIF offices are closed for the Federal Holiday on Monday, May 27, but the website is always open. You can search for disease information or register for webinars and conferences at https://www.aamds.org. Send messages through email at [email protected], or leave a message on the chatline. We look forward to hearing from you.
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As Oncology Nursing Month comes to an end, we promise never to forget these angels who serve patients with #aplasticanemia, #MDS, and #PNH! We appreciate you! A million thanks to all the oncology nurses who help the bone marrow failure community! We appreciate you 👼 #oncologynursingmonth