Autistic people are reported to have poorer Quality of Life (QoL) and well-being than their non-autistic peers. This project examined methods used to report on the QoL and/or well-being of autistic people by searching four databases in June 2023. The researchers identified 256 studies that reported on the Qol and/or well-being of at least one autistic person. Results were synthesised on who reported, who was reported on, how information was obtained including accommodations and community involvement. This is one of several projects Autism CRC researchers presented at #INSAR2024. Read more 👇 https://lnkd.in/g_jiMzaF
Autism CRC
Research
Indooroopilly, Queensland 3,962 followers
Our vision is to see autistic people empowered to use their diverse strengths and interests.
About us
Autism CRC was established in 2013 and is the world’s first national, cooperative research effort focused on autism. We provide the national capacity to develop and deliver evidence-based outcomes through our unique collaboration with the autism community, research organisations, industry and government. Currently, we have 55 participant organisations and other partners based around Australia and internationally. Our vision is to see autistic people empowered to discover and use their diverse strengths and interests. Our mission is to motivate, facilitate and translate collaborative autism research across the life span, underpinned by inclusive practices. Our programs take a whole-of-life view from diagnosis and the early years, through the school years and into adult life. We are committed to inclusive research practices and co-production of outcomes with those on the spectrum and their families to ensure our research provides practical and tangible outputs that benefit the community.
- Website
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http://www.autismcrc.com.au
External link for Autism CRC
- Industry
- Research
- Company size
- 51-200 employees
- Headquarters
- Indooroopilly, Queensland
- Type
- Public Company
- Founded
- 2013
Locations
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Primary
Get directions
80 Meiers Rd
Indooroopilly, Queensland 4068, AU
Employees at Autism CRC
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Aefre (Katharine) Annear MAICD
Training and Consultancy. Subject Matter Expert - Disability Studies, Autism, Mental Health and Complex Needs.
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Robert van Barneveld
CEO | Non-Executive Director | Board Chair | Science into Business
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Scott Reading
Principal, Horizzen Consulting; Non-executive Director Brisbane, Queensland, Australia.
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Wojciech Nadachowski
CRC Operations Specialist
Updates
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The SACG implementation Short course is ideal for practitioners who are interested in implementing best-practice and an evidence-based approach within their clinical setting. The modules and lessons will teach you how to effectively implement the Guideline Recommendations within practice when selecting, planning, delivering and monitoring supports. Find out more 👇 https://lnkd.in/gxKe4Kdq
For practitioners: eLearning and resources | Supporting Autistic Children Guideline
autismcrc.com.au
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Measuring the Quality of Life (QoL) of autistic adults uses the same measures created for the general population. However, research has demonstrated that there are nuances and additional factors that influence autistic adult QoL that isn’t being captured. This project gathered information from previous qualitative studies to propose a new way to measure autistic adults QoL that captures these nuances and additional factors. This is one of several projects Autism CRC researchers presented at #INSAR2024. Read more 👇 https://lnkd.in/gMqxCZwR
Understanding the content validity and clinical utility of a quality of life measure designed with and for autistic adults
autismcrc.com.au
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A new suite of implementation resources for the Supporting Autistic Children Guideline (SACG) are now available. The Journey planner is designed to help parents and caregivers know what to expect when working with practitioners, and to feel confident in finding the right people and supports for their child and family. Download now 👇 https://lnkd.in/gmbwUb5W
For community: eLearning and resources | Supporting Autistic Children Guideline
autismcrc.com.au
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The second edition (2023) of the National Guideline for the assessment and diagnosis of autism in Australia is now available. You may find the updated Guideline: ✅ easier to read ✅ expands on practical information ✅ allows for increased flexibility ✅ features neurodiversity-affirming language Find out more 👇 https://lnkd.in/gtfgcDDu
Second edition overview | Assessment and Diagnosis Guideline
autismcrc.com.au
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New resources are available to help support autistic children and their families. The SACG Short course includes practical resources and case studies to guide you through planning and implementation that is relevant to your situation. The modules and lessons will cover: ✅ Guiding principles ✅ Goal setting ✅ Selecting and planning supports ✅ Delivering supports ✅ Outcomes, quality and safeguarding Find out more 👇 https://lnkd.in/gmbwUb5W
For community: eLearning and resources | Supporting Autistic Children Guideline
autismcrc.com.au
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Congratulations to Dr Chloe Yap and Professor Andrew Whitehouse! Dr Yap was awarded a Dissertation Award at the INSAR 2024 Awards Ceremony in Melbourne last night for her work using data from the Australian Autism Biobank. Professor Whitehouse was announced as an INSAR 2024 Fellow. In 2021, Dr Yap's research team conducted ground-breaking research that successfully challenged the growing popular belief that the gut microbiome drives autism, finding that "fussy eating" was the cause. https://lnkd.in/gdBse4wm In 2023, Dr Yap's research team investigated if fat molecules (lipids) contributed to sleep disturbances in autistic children, discovering a link between poor sleep and an unhealthy diet. https://lnkd.in/gcUvCyxj
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Today is the 'International Day against Homophobia, Biphobia, Intersex discrimination and Transphobia' (IDAHOBIT). It is a day of celebration and commemorates the World Health Organisation's decision on 17 May 1990 to declassify homosexuality as a mental disorder. This year's theme is: 'No one left behind: equality, freedom and justice for all'. We continue working towards achieving respect and acceptance in our workplaces, local communities and among friends and family. Learn more 👇 https://lnkd.in/gzUMFPbM
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Autism CRC is at INSAR 2024! The Annual Meeting is being held in Melbourne between 15-18 May. Find out more about INSAR 👇 https://lnkd.in/eWdJiBRt
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